Preferred Terminology for Autistic Individuals: Identity-First vs. Person-First

The way we refer to individuals with autism is an important consideration, reflecting respect and understanding. This discussion delves into the nuanced preferences of the autistic community regarding label-first and person-first language, emphasizing the importance of personal preference.

Introduction to Autism Terminology

When referring to individuals with autism, the terms used can have significant implications. This article explores the debate between identity-first language (e.g., autistic person) and person-first language (e.g., person with autism) and provides insights into the preferences of autistic individuals.

Identity-First vs. Person-First Language

Autistic individuals generally prefer identity-first language. They see their autism as an integral part of their identity, rather than a separate illness or disability. Identity-first language acknowledges this perspective by placing the autism descriptor directly before the individual's identity.

While person-first language emphasizes the individual before their condition, many autistic individuals find this representation less inclusive. They want their autism to be acknowledged directly, as a meaningful part of who they are. Here are some examples and contexts where these terms are used:

Examples and Situations

1. **Professional Writing**: In technical and research writing, the consensus often prefers person-first language. For example, a researcher might write, "Person with autism participates in the study."

2. **Everyday Communication**: In personal and casual settings, many autistic individuals prefer identity-first language. For instance, an autistic individual might prefer to be referred to as an "autistic person" rather than "person with autism."

Personal Preferences and Acceptance

The choice between identity-first and person-first language is deeply personal and varies among individuals. It is crucial to respect the individual's preference and communicate with them about their preference. Here are some key points to consider:

Respecting Individual Preferences

1. Ask and Adhere: Always ask the individual what terminology they prefer, and respectfully adhere to their preference. Autistic individuals may be more comfortable with "autistic person" or "person with autism" depending on the context.

2. User-Centric Language: Use language that puts the person first by adopting their preferred terminology.

3. Empowerment: Language should empower the individual, allowing them to feel seen and understood as a whole person, not just their condition or diagnosis.

Challenging Misconceptions

There are misconceptions and arguments against both identity-first and person-first language, which can be harmful and offensive. It is important to address these misconceptions:

Fact vs. Fiction

1. **Identity-First Language is Not Grammatically Incorrect**: Many argue that person-first language is grammatically correct, but this is a matter of personal preference. Using identity-first language does not imply a lack of acceptance or validation of autism.

2. **Respect is Key**: Autistic individuals may use person-first language, but they still value their identity and see their autism as a crucial part of who they are. Labeling someone solely by a condition can undermine their identity.

3. **Empathy and Understanding**: When communicating with autistic individuals, aim for empathy and understanding. Respect their choice of terminology and avoid making assumptions based on language alone.

Conclusion

The terminology used to refer to autistic individuals is a matter of personal preference and should be based on the individual's own choice. While identity-first language is generally preferred, the key takeaway is to prioritize respect and understanding. By acknowledging and valuing the individual's identity, we can create a more inclusive and supportive environment for all.

References

1. Centers for Disease Control and Prevention. About Autism Spectrum Disorder. (2022).

2. Autism Society. Choosing Language. (2022).