What Happens After My Parents Die: A Guide for Individuals with Autism Spectrum Disorder and Severe Anxiety

At the age of 40 with a diagnosis of autism spectrum disorder (ASD) and severe anxiety, it is natural to be concerned about what will happen if your parents pass away. Particularly when you depend on them for daily care, legal affairs, medications, and more, planning ahead is crucial. This guide will help you understand the steps you can take to ensure your well-being after your parents are no longer able to provide support.

Important Conversations to Initiate with Your Parents

Early Communication

Initiating the conversation about your future care needs is the first step. You may be facing a difficult topic, but it is essential to talk to your parents as soon as possible about your concerns. They may have already discussed potential caregivers with other family members. If not, this conversation is the perfect time to bring it up. Explaining your fears and needs can help them prepare for the responsibilities ahead.

Password to Legal and Financial Planning

Community Resources and Professional Help

If your family cannot provide the necessary support, consider reaching out to community resources. Many community mental health centers offer case workers who can assist individuals with disabilities who have additional mental health challenges. Your parents can explore these options to find the right support for you. Also, word of mouth and online resources can provide valuable information on available community services.

Collaborative Approach: Family and Therapist Involvement

Consulting a Therapist

Consulting a therapist or counselor can be beneficial. They can provide guidance on developing basic life skills and managing daily tasks. This professional support can also help you navigate the emotional challenges associated with the loss of your parents. Additionally, therapists can offer strategies to cope with anxiety and PTSD, which are often linked to traumatic experiences.

Tips for Starting the Conversation

Choose a time when both you and your parents are relaxed and not rushed. Be as specific as possible about your concerns and needs. Listen actively to any concerns or suggestions your parents may have.

Exploring Legal Guardianship

Legal Guardianship Planning

Discussing and planning for legal guardianship is crucial. This involves appointing someone to manage your affairs when you are no longer capable of doing so. This can include managing your medications, healthcare decisions, and financial matters. Consulting with a lawyer who specializes in such cases can help clarify your options and ensure that your wishes are documented properly.

Utilizing Online Resources for Guidance

Psychology Today: Offers articles and advice on mental health and coping strategies. National Alliance on Mental Illness (NAMI): Provides information and support for individuals with mental health disorders. Jeff Bourget on Quora: Offers valuable insights on mental health and resources.

Starting the conversation about your future care and legal needs early can provide you with peace of mind and the support you need to navigate life's challenges. It is important to approach this topic with sensitivity and respect, ensuring that all parties involved are considered and heard.