Exploring Independence Among Adults with Asperger’s Syndrome or Autism

Living independently as an adult with Asperger’s syndrome or autism can be both a challenge and a rewarding journey. This article delves into the realities of such a journey, drawing on personal experiences and broader insights from the community.

The Evolving Understanding of Asperger’s Syndrome

It is important to start with an understanding that the term Asperger’s Syndrome no longer exists in clinical classifications. In the Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), it was reclassified as a part of the broader Autism Spectrum Disorder (ASD). This reclassification acknowledges the spectrum's diverse manifestations, each with its own set of challenges and strengths.

Challenges and Statistics

Estimates of the prevalence of ASD range from 1% to 2% of the population, but these figures are likely underestimations. Countries with more robust diagnostic and reporting systems likely have more accurate figures. A significant challenge in estimating prevalence is that Asperger’s Syndrome (now Autism Spectrum Disorder) was historically underdiagnosed, particularly in women.

The Adaptability of Individuals on the Spectrum

Many individuals with ASD attend mainstream educational settings. Studies suggest that about 91% of those with ASD are educated in mainstream schools. This suggests a high level of adaptability and ability to navigate the challenges of an inclusive educational environment. Generally, those who thrive in mainstream schooling can also thrive in living independently as adults.

Personal Journey of Independence

My own story offers a real-life example of what it means to live independently with autism. I was diagnosed with Asperger’s (now High Functioning Autism) at the age of 5 and am now 23. I work full-time, drive, and live in a rented flat with three childhood best friends. My independence from my parents and a circle of good friends prove that living independently is possible with the right support and foresight.

Some of the key aspects that have contributed to my independence include:

Cooking and Financial Stability: My interest in cooking has helped me maintain my own meals and manage expenses effectively. Hygiene and Order: My OCD for cleanliness and order ensures that my living space remains clean and tidy. Past Support: Early diagnosis and intervention provided the necessary support to grow into an independent individual.

Challenges and Continued Support

Living independently is not without its challenges. Despite my successes, I still struggle with social situations and mental health. Effective emotional and psychological support from friends is crucial. However, I have learned to observe and navigate social dynamics, which helps me fit in and handle most situations as a shy but normal individual.

Personal Reflections: Deciding to move out and become independent was a significant and empowering decision. While it has come with its fair share of mental health challenges, the freedom to make my own life choices and have a place of my own has been incredibly rewarding.

Conclusion: Possibilities and Empowerment

My story is but one example, and while living independently presents unique challenges, it is certainly possible for those with AS/HFA. With the right support, early intervention, and a strong support network, many individuals with autism can achieve a high level of independence in adulthood.

Regardless of the challenges, the journey towards independence is a testament to the resilience and adaptability of those on the autism spectrum. By understanding and embracing the realities of living independently, we can better support these individuals and empower them to lead fulfilling lives.