Dementia Awareness: Understanding Cognitive Decline in Alzheimer's and Parkinson's Patients

Alzheimer's and Parkinson's diseases are both cognitive disorders that progressively affect a person's ability to carry out daily activities and maintain their identity. Many people with early-stage dementia are often unaware of their condition, while those with advanced stages confront a relentless decline. This article explores the cognitive journey of individuals living with these diseases, their awareness levels, and the challenges they face.

Does Someone with Dementia Know They Have It?

Individuals with early-stage dementia may not be aware that they have the disease. They might even deny it when confronted. This is particularly true in Alzheimer's, where cognitive changes are subtle and gradual. The diagnosis can be distressing, as it robs a person of their sense of identity and self-awareness. Eventually, the condition can progress to a stage where the individual cannot recognize familiar faces, including family members. This stage is particularly heartbreaking for both the patient and their loved ones.

Personal Experience with Parkinson’s Disease

I, personally, have Parkinson's disease, which is often associated with dementia or parkinsonism dementia. The disease has significantly impacted my "cognitive functions," affecting my ability to manage complex tasks and think abstractly. Before my diagnosis, I held advanced positions in academia, publishing several textbooks, holding a PhD in Economics, a Juris Doctor (JD) in law, and contributing to numerous peer-reviewed articles.

With the onset of Parkinson's, cognitive impairments became evident. Physical signs such as tremors and loss of motion were accompanied by intellectual challenges. Tasks that once seemed straightforward, such as remembering lists or making complex decisions, became more difficult. This decline was marked by a series of cognitive tests, including IQ, cognition, and memory assessments. Watching myself deteriorate during these evaluations was a profound and painful experience.

Loss of Intellectual Capabilities

One of the most challenging aspects of cognitive decline is the realization of one's diminished capabilities. Despite my strong vocabulary and past accomplishments, I now find it difficult to find the right word at times. This gap between my past intellectual prowess and current limitations is distressing. When communication is hindered, the frustration can be palpable, and the effort to cover up the gaps by using less accurate words is a constant struggle.

Emerging Awareness

Contrary to the common belief that all individuals with cognitive decline are unaware, I have a strong awareness of my condition. I can see a significant change in my cognitive abilities over the months and know how much farther I have to go. Medical professionals predict that it will likely take me several years to reach a certain level of cognitive decline, which is an advantage in a way. However, the long-term knowledge of my disease exacerbates the frustration and anger I feel when I realize how much I have lost.

Conclusion

The journey of cognitive decline is a deeply personal and intricate one. While some individuals, like myself, are keenly aware of their developing condition, others may remain in the dark for longer. Each stage of cognitive decline presents unique challenges, and the awareness of these changes can be as impactful as the changes themselves. As society continues to grapple with these diseases, greater awareness and support for those affected are crucial.